One Woman's Experience with Xenical

I want to make a reservation for my English not being medically quite correct, but my aim is to make most people understand this and of course I would be grateful if there would be someone in the world able to help me. I have studied nutrition for 20 years on my own, and now I have also studied several books about the body's defense system. Before Xenical I had a strong immune system which is one of the reasons why I am still alive.

I took 4 months' consumption of Xenical in 1999. Already during these months I got problems with eczema and stopped the treatment. The problems continued. No doctor was able to help me (or even knew what happened). I became a pioneer with information about side effects. The diagnosis is chronic urticaria, but I also got other side effects caused by Xenical, as exanthema multiforme, rash erythematous, skin redness, flush, cold perspiration, ague, oedema, itching over the whole body, heart palpitation and high blood pressure.

My body considers this medicine so poisonous that it continues to defend itself against Xenical, even though it is almost two years since I stopped to take Xenical. I am a living evidence proving that the defense system of the body causes these side effects. First I became allergic towards the food I ate when I was on Xenical: olive oil, linseed and all essential fatty acids. One of the pictures (1999-10-24) is taken after a reaction of 2 spoons of linseed, which I earlier consumed for years without any problems. Then I became allergic to all vegetable fats and then hardened fats. Now I become allergic to all food when the body recognize it. And also to water, all soaps, shampoos and creams - everything that comes into my body, except air. I can stand everything in an unknown environment when my brain is diverted by new impressions. If I eat something before going to sleep, my brain instructs the body to defend itself while sleeping and when I wake up I am swollen with eczema and look grotesque. When I see food or think of food my face is burning and perspiring. The defect is in the brain, which instructs the body to defend itself and consider all food as Xenical. If I e.g. drink a lot of water, the kidneys conduct the water wrongly in effort to neutralize the poison in the body and I swell. When I become swollen, my eyelids also swell inwards and hurt the eyes. I have permanent heart palpitation and high blood pressure. In the nights I am often awake with itching and heart palpitation. In the mornings when I think of breakfast my face is burning and perspiring. After shower the water (which comes inwards by the pores) starts the defense system of the body and I perspire for 15 minutes afterwards. Then body lotion starts perspiration another quarter in the same way. When I eat breakfast my face is burning and perspiring and after that I am freezing a.s.o. day and night. I have got no help, neither economically nor medically and my life is a daily torture coupled with enormous expenses.

Hospital (Huddinge dermatological clinic) treatment is a failure (like all other hospital treatments so far). Every attack when I look like the pictures shown, earlier lasted for about 2 weeks. After ordination of heavy amount of medicine against allergy, I am more swollen with increased heart palpitation and similar attacks now last for about 5 weeks. So, doctors are of no help, so far. These attacks make me more isolated than criminals in prison. I feel like being the only one having survived a big disaster and left so seriously hurt that no one is able to understand.

I wanted to believe in Xenical and got in touch with the Swedish Medical Products Agency before I took the medicine. After they told me that the only side effect could appear if you eat too fatty food, I decided to try. I am scared that less than one percent of all the doctors I met understand this or that it can be dangerous and also unethical to force a healthy organ (pancreas) to act in a wrong way by medicine. I want to warn others of the fact that this medicine is so dangerous that you can get a severe damage in the immune system of the body, which no doctor today is able to cure.

The text above was written on 2001-05-24.

This photo is taken one day without anaphylaxis between those two pictures above